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What is the future for a child with spina bifida? - Disabled Village Children - Page 186
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168 chapter 22
What is the future for a child with spina bifida?
This will depend first on how serious the defect is,
next on medical treatment and general care, and finally
on special training and on family and community support.
The higher up the back the defect is or the more
severely the spinal cord is affected, the worse the
paralysis and other problems are likely to be. If the head
is already very swollen, the child’s chances are poor. The
costs will usually be great, even for a rich family. Surgery
to drain the liquid from the head is sometimes followed by infection. The operation
may need to be repeated several times. In spite of the best medical attention, at least
1 of every 4 or 5 children born with severe spina bifida dies in the first months or years
of life.
However, the child with a defect that is low down on the back usually has less
paralysis, and has a good chance of living a full and happy life. With good family and
community support, many children with spina bifida go to school, learn to do many
kinds of work, get married, and have children.
Often these children are late in learning basic skills for self-care (getting dressed,
eating, going to the bathroom). This is partly because of the disability. But it is
also because their parents often overprotect them and do everything for them. It is
important for parents to help these children to do more for themselves.
What are the chances that my child with spina bifida will walk?
This depends on many factors. However, the higher up the defect is on the spine, the
more paralysis the child will probably have. The drawings below show how likely it is for
the child to walk, based on the level of the defect. The shaded areas show the parts of
the body affected by paralysis and loss of feeling.
BONES OF THE ‘BACKBONE’ (SPINE)
7
neck bones
(cervical
vertebrae)
LEVEL
OF DEFECT
PROBABLE AMOUNT
OF DISABILITY
• probably will not walk
• cannot control urine
or stools
12
back bones
(thoracic
vertebrae)
5
waist bones
(lumbar
vertebrae)
• may walk using
aids when small
• later may need
wheelchair
• cannot control
urine
5
joined bones
at the seat
(sacrum)
• may walk with
little or no help
• may be able to
control both urine
and stools (peeing
and shitting)
Disabled village Children
Static
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images)aa - ab - af - ak - als - am - an - ang - ar - arc - as - ast - av - ay - az - ba - bar - bat_smg - bcl - be - be_x_old - bg - bh - bi - bm - bn - bo - bpy - br - bs - bug - bxr - ca - cbk_zam - cdo - ce - ceb - ch - cho - chr - chy - co - cr - crh - cs - csb - cu - cv - cy - da - de - diq - dsb - dv - dz - ee - el - eml - en - eo - es - et - eu - ext - fa - ff - fi - fiu_vro - fj - fo - fr - frp - fur - fy - ga - gan - gd - gl - glk - gn - got - gu - gv - ha - hak - haw - he - hi - hif - ho - hr - hsb - ht - hu - hy - hz - ia - id - ie - ig - ii - ik - ilo - io - is - it - iu - ja - jbo - jv - ka - kaa - kab - kg - ki - kj - kk - kl - km - kn - ko - kr - ks - ksh - ku - kv - kw - ky - la - lad - lb - lbe - lg - li - lij - lmo - ln - lo - lt - lv - map_bms - mdf - mg - mh - mi - mk - ml - mn - mo - mr - mt - mus - my - myv - mzn - na - nah - nap - nds - nds_nl - ne - new - ng - nl - nn - no - nov - nrm - nv - ny - oc - om - or - os - pa - pag - pam - pap - pdc - pi - pih - pl - pms - ps - pt - qu - quality - rm - rmy - rn - ro - roa_rup - roa_tara - ru - rw - sa - sah - sc - scn - sco - sd - se - sg - sh - si - simple - sk - sl - sm - sn - so - sr - srn - ss - st - stq - su - sv - sw - szl - ta - te - tet - tg - th - ti - tk - tl - tlh - tn - to - tpi - tr - ts - tt - tum - tw - ty - udm - ug - uk - ur - uz - ve - vec - vi - vls - vo - wa - war - wo - wuu - xal - xh - yi - yo - za - zea - zh - zh_classical - zh_min_nan - zh_yue - zu -
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